...the day after. Once we got over the initial shock of hearing once again that there is nothing we can do to make it better for Will, we woke up in better spirits. We are blessed to have so many wonderful friends and neighbors who help to pull us up by the boot straps as well.
Even though there is nothing medically we may be able to do to make things better for Will, we started immediately working on pacing him during his meals and snacks. Guess what...the test was right...he does much better when paced, so for now, we will do it this way and try and train him to wash his food down or to slow down to see if we can minimize discomfort for him. Meanwhile, we'll pray that there will someday be something out there that can better treat motility. Or that his will get better.
On the same day, he was in great spirits, and counted independently to fourteen for us. What a treat! So fun hearing what he has been learning all along as his speech improves a little each day.
We also received a letter on Friday (the same, yucky day) to let us know that he did not get into the apraxia program that we had him evaluated for at a private school. This was not a surprise to me, but let's say I wasn't happy that the school waited two months to let me know. Not very professional and not a school I will advocate for in the future. Too bad. Meanwhile, I have started compiling a list of schools to go and tour in the fall to determine where Will will go for kindergarten.
Friday night we went to a bouncy, blow up type place for one of our neighbor's birthday parties. It was so much fun to watch all three of my children have an absolute blast on the equipment. Norah has no fear and jumped right in with the big kids. She is a whirlwind and at such a fun age. Will had no problem jumping right in either, which is such a huge change from last year (the little neighbor had his party there last year as well). Last year, it was right before we found out how low he was in carnitine, which has made the huge difference for this kiddo. Caroline, of course, was hard to locate and photograph the whole party! :)
2 comments:
That sounds like a great day Heather...you guys deserve lots of those. We miss you and can't wait to see you in a couple months.
Love you,
Jen
Hi Heather,
Would you mind emailing me about the apraxia program you mention. My friend's son is affected. I am sorry that Will did not get accepted, but know you are directing your son's therapeutic needs as best you can.
Thanks, Stacey
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